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Toilet Smug
In London we’ve been back in lockdown since just before Christmas – not that it’s made much difference to me because I’ve been shielding since last March! The latest lockdown, combined with Brexit, has...
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Introducing the Practical Intervention Fund
It’s been almost a month since Katie joined the Touretteshero team as our new Solidarity Worker. She’s working on some exciting projects that we hope will provide better support and creative...
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YADP: The Young Artists Development Programme
A few weeks ago, I had the pleasure of introducing our new Practical Intervention Fund, and in case that wasn’t exciting enough, I now have another brilliant opportunity to tell you about. This one’s...
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Wheelchair Love - A Guide for New Wheelchair Users
Today is International Wheelchair Day – to me this is like Valentine’s Day, but for wheelchair users and their chairs. It’s almost ten years since my tics began having a significant impact on my...
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Fly Hard
Leftwing Idiot, among other things, is a self-confessed Sneaker Head. As he often reminds me, he’s been that way since secondary school when having the wrong pair of trainers was a risky business....
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Power Break
It’s almost the end of the Easter holidays and I’m back at work after some much-needed time off. But it’s not just regular holidays that are important to my wellbeing: short breaks every day have...
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Picturing A Plan
Last year I wrote about an approach to help manage challenging situations that I’d been introduced to – it had as its acronym: STOP. I created a drawing to go with it to help me and my support team...
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Happy Bath Day
I’ve just had the best bath!!!! No exaggeration – I’ve haven’t had a better bath in my whole life! Better even than the shared baths my oldest friend and I used to engineer by rolling in mud at each...
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An Appointment With Pain
Tomorrow I have a phone appointment with the pain clinic. I’ve been under their care for a few years since I began experiencing chronic pain probably caused by the long-term impact of my tics, and...
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Project Twenty21
A couple of years ago I was in Portland, Oregon performing at a festival. We were over there for a couple of weeks and had an incredible time. This was partly because of the place and the people, but...
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There’s More Than One Touretteshero!
Over the last few years my iPad has enabled me to draw in a way that I thought my arm tics had made impossible. I find drawing really absorbing and relaxing and am now scribbling away on my iPad all...
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Your Ableism Is Showing
I’ve waited a couple days before writing this post to let the rage and fury subside so I can write it with the clarity it deserves. First a warning, this post is about ableist attitudes in theatre,...
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No Burn Out in Biscuit Land
We’re starting two weeks of research and development for a new show soon. It’s going to be called Burnt Out In Biscuit Land and in it we’ll be re-visiting the surreal world my tics create around me –...
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Jazz’s Support Request
Last year I wrote a post about the power of taking breaks. I described how I’d learnt to recognise when I needed to stop, and the type of break my body or mind required – sometimes this involves...
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Finding My Power (Wheel)
It’s almost exactly ten years since I started using a wheelchair – tics in my legs had caused repeated injuries and moving around had become increasingly fraught. But the decision to start one was made...
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Routine Reimagined
I find transitioning from one activity to another tricky. I struggle with planning my time and understanding and the order in which I need to do things. This is particularly hard when I’m tired, so...
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A New Prescription
In 2018 we took my stand-up show to Portland, Oregon, for two weeks. In Portland cannabis is legal, and for the time I was there I was able to buy and use cannabis gummies that had a massive impact on...
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Solidarity Round-Up - Katie Goldfinch
I started working for Touretteshero just over a year ago. It’s been a busy and exciting time, but also an unusual one – because until a few weeks ago I’d never met any of the Touretteshero team in...
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PIF Reloaded - Katie Goldfinch
Last March we launched our Practical Intervention Fund, which provided small items related to wellbeing and relaxation to deaf, disabled and neurodivergent people of all ages. It was the first time...
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Picturing Peace With Pain
For as long as I can remember, I’ve used drawing to help me explore my surroundings and make sense of the world. When I struggled to learn things in primary school I was encouraged to draw instead of...
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