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Carbon Fibre v Tourettes
Carbon fibre may be five times stronger than steel, but it’s no match for tics! Last night my much-loved wheelchair suffered a shocking break. I was out at a pub for my friend Lottie’s birthday and...
View ArticleGiving Up The Ghost
A few days ago I mentioned the spooky goings-on in my bathroom. I described how my inflatable bath-lift (which helps me get in and out of the bath) had suddenly started inflating itself in the middle...
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Welcome Back Fingers
It’s been gloriously sunny and this evening Will and I soaked it up as we went from work to a pub in Brixton, with him pushing his bike and me pushing myself in my wheelchair. We were off to meet our...
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This Is Not A Safety Belt
I have a seatbelt on my wheelchair. For me it’s essential because my body moves around unpredictably. I’m having an on-going battle with my belt – it needs tightening all the time because it gets...
View ArticleTooth Post
Just over a week ago a new toothbrush arrived at the castle. This one didn’t belong to a new support worker – it was for me. And for a variety of reasons (excuses) it’s taken me a while to get round to...
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The Right Chair
Regular readers of this blog will know I need no excuse to write about wheelchairs. When it comes to wheelchairs I’m a woman obsessed, but it’s an obsession with a very valid origin. The right...
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RIP Wheelchair
I woke feeling strangely tense and have felt the same almost all day. There was no particular reason for it and it made me gloomy and irritable. But this evening something happened that broke this...
View ArticleA Break From The Fringe
This morning I was a woman on a mission. Before our performance of Backstage In Biscuit Land at 5pm I needed to find a new set of wheels, my own wheelchair having suffered a catastrophic injury in an...
View ArticleI Eat My Peas With…. Finesse
Yesterday was National Poetry Day. The second poem I ever learnt by heart was about peas: ‘I eat my peas with honey; I’ve done it all my life. It makes the peas taste funny, But it keeps them on the...
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RIP Wheelchair
I woke feeling strangely tense and have felt the same almost all day. There was no particular reason for it and it made me gloomy and irritable. But this evening something happened that broke this...
View ArticleA Break From The Fringe
This morning I was a woman on a mission. Before our performance of Backstage In Biscuit Land at 5pm I needed to find a new set of wheels, my own wheelchair having suffered a catastrophic injury in an...
View ArticleI Eat My Peas With…. Finesse
Yesterday was National Poetry Day. The second poem I ever learnt by heart was about peas: ‘I eat my peas with honey; I’ve done it all my life. It makes the peas taste funny, But it keeps them on the...
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Guillotining My Way To Christmas
As we speed towards Christmas I spent yesterday doing some last minute present shopping. Now that’s all pretty much finished I’ve turned my attention to wrapping. There are two elements of present...
View ArticleMy Castle Is My Home
Today’s the start of my fifth year at the castle, and that means it’s now the longest I’ve lived anywhere since I left home. I love being here, so it’s strange to remember how reluctant I was to move...
View ArticleChair Breaker
When I was a child my dad used to say I needed shoes made of iron because of how quickly I managed to destroy them. I never really understood his concern but I’m starting to have some sympathy with him...
View ArticleAn Otter Saves The Day
My possessions have quite a hard life. My tics mean that my things get dropped, thrown, bitten and squished much more often than other people’s. This means I seek out robust tic-proof items wherever...
View ArticleWheel Woes
I have four wheelchairs: my heavy NHS chair, my everyday chair, my all-terrain chair for work and festivals, and a light-weight folding back-up-chair which I had to get when my everyday chair...
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Wheelchair Fraud
Five years ago tics in my legs started affecting my mobility so much that one consultant rather upsettingly described it as being like ‘the Ministry of Silly Walks’. I struggled on for months, walking...
View ArticleGliding
Three years ago on a sunny spring day Will and I went for a walk in our local park. It was a memorable walk for three reasons. First, it was one of the first times Will and I did something...
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The Tourettes-mobile
Back in February I gave a talk at 5×15 in Bristol, an event that brought together an eclectic mix of speakers. It was a fascinating evening and it got me thinking about loads of new ideas. The...
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